Is there a need for a Secondary Breast Cancer Nurse Specialist in Northern Ireland?
Association of Breast Surgery ePoster Library. Paget G. 05/13/19; 257143; P099
Glenda Paget
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P099
Topic: Nursing practice
Introduction: Of 691,000 people with breast cancer in the UK, approximately 30% will develop secondary breast cancer (SBC) within 15 years. 35,000 are living with SBC and 11,500 die annually from the disease.Since 2013 it has been compulsory for Health Trusts in England to collect data on SBC but this has not been the case in Northern Ireland. Methods New diagnoses of SBC since mid-2016 were recorded. Clinic lists trawled and SBC patients identified. Experience surveys and focus group invitations were sent to appropriate patients with SBC diagnosed more than 2 months before asking questions about their experience of care and improvements needed. Results: From June 2016-November 2018, 255 were identified with SBC. Currently 155 with SBC in the Belfast Trust. Average of 70 new diagnosis SBC per year. 103 surveys distributed, 40 returned (39% response rate). 5 SBC patients attended the patient focus group.Gaps in care relating to Specialist Nursing Support included:Lack of support servicesPoor understanding of contacts and supportLack of Holistic Needs Assessment provisionNo ongoing specialist nursing supportConclusionsSBC patients in Northern Ireland who have complex support needs do not have access to the support available to such patients throughout the rest of the UK.Currently Breast Care Nurses provide ad-hoc support for these patients. A review of the service with Breast Cancer Care and Breast Cancer Now, identified the need to develop a support group, better information, a secondary support package and to secure funding for a SBC Nurse Specialist.
Topic: Nursing practice
Introduction: Of 691,000 people with breast cancer in the UK, approximately 30% will develop secondary breast cancer (SBC) within 15 years. 35,000 are living with SBC and 11,500 die annually from the disease.Since 2013 it has been compulsory for Health Trusts in England to collect data on SBC but this has not been the case in Northern Ireland. Methods New diagnoses of SBC since mid-2016 were recorded. Clinic lists trawled and SBC patients identified. Experience surveys and focus group invitations were sent to appropriate patients with SBC diagnosed more than 2 months before asking questions about their experience of care and improvements needed. Results: From June 2016-November 2018, 255 were identified with SBC. Currently 155 with SBC in the Belfast Trust. Average of 70 new diagnosis SBC per year. 103 surveys distributed, 40 returned (39% response rate). 5 SBC patients attended the patient focus group.Gaps in care relating to Specialist Nursing Support included:Lack of support servicesPoor understanding of contacts and supportLack of Holistic Needs Assessment provisionNo ongoing specialist nursing supportConclusionsSBC patients in Northern Ireland who have complex support needs do not have access to the support available to such patients throughout the rest of the UK.Currently Breast Care Nurses provide ad-hoc support for these patients. A review of the service with Breast Cancer Care and Breast Cancer Now, identified the need to develop a support group, better information, a secondary support package and to secure funding for a SBC Nurse Specialist.
P099
Topic: Nursing practice
Introduction: Of 691,000 people with breast cancer in the UK, approximately 30% will develop secondary breast cancer (SBC) within 15 years. 35,000 are living with SBC and 11,500 die annually from the disease.Since 2013 it has been compulsory for Health Trusts in England to collect data on SBC but this has not been the case in Northern Ireland. Methods New diagnoses of SBC since mid-2016 were recorded. Clinic lists trawled and SBC patients identified. Experience surveys and focus group invitations were sent to appropriate patients with SBC diagnosed more than 2 months before asking questions about their experience of care and improvements needed. Results: From June 2016-November 2018, 255 were identified with SBC. Currently 155 with SBC in the Belfast Trust. Average of 70 new diagnosis SBC per year. 103 surveys distributed, 40 returned (39% response rate). 5 SBC patients attended the patient focus group.Gaps in care relating to Specialist Nursing Support included:Lack of support servicesPoor understanding of contacts and supportLack of Holistic Needs Assessment provisionNo ongoing specialist nursing supportConclusionsSBC patients in Northern Ireland who have complex support needs do not have access to the support available to such patients throughout the rest of the UK.Currently Breast Care Nurses provide ad-hoc support for these patients. A review of the service with Breast Cancer Care and Breast Cancer Now, identified the need to develop a support group, better information, a secondary support package and to secure funding for a SBC Nurse Specialist.
Topic: Nursing practice
Introduction: Of 691,000 people with breast cancer in the UK, approximately 30% will develop secondary breast cancer (SBC) within 15 years. 35,000 are living with SBC and 11,500 die annually from the disease.Since 2013 it has been compulsory for Health Trusts in England to collect data on SBC but this has not been the case in Northern Ireland. Methods New diagnoses of SBC since mid-2016 were recorded. Clinic lists trawled and SBC patients identified. Experience surveys and focus group invitations were sent to appropriate patients with SBC diagnosed more than 2 months before asking questions about their experience of care and improvements needed. Results: From June 2016-November 2018, 255 were identified with SBC. Currently 155 with SBC in the Belfast Trust. Average of 70 new diagnosis SBC per year. 103 surveys distributed, 40 returned (39% response rate). 5 SBC patients attended the patient focus group.Gaps in care relating to Specialist Nursing Support included:Lack of support servicesPoor understanding of contacts and supportLack of Holistic Needs Assessment provisionNo ongoing specialist nursing supportConclusionsSBC patients in Northern Ireland who have complex support needs do not have access to the support available to such patients throughout the rest of the UK.Currently Breast Care Nurses provide ad-hoc support for these patients. A review of the service with Breast Cancer Care and Breast Cancer Now, identified the need to develop a support group, better information, a secondary support package and to secure funding for a SBC Nurse Specialist.
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