Supporting Survivors to Manage their Cancer Surveillance: Not Merely a Reallocation of Resources
Association of Breast Surgery ePoster Library. Whitehead I. 05/13/19; 257175; P133
Mr. Ian Whitehead
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P133
Topic: Other
Introduction: An estimated 570 000 UK women live with and beyond the treatment of breast cancer, which is set to exceed 1.6 million by 2040. Current surveillance pathways will not meet the additional demand. The National Cancer Survivorship Initiative recommend supported self- management (SSM) systems to alleviate service pressures, reallocate resources efficiently and empower patients. We began a SSM surveillance programme via an online portal in November 2016. Our study aims to explore the patient perspective of our new service. MethodSurvey responses between two patient groups were compared, SSM patients and those with traditional annual clinic follow-up (FU). We used a Likert item and free text survey. Results: Survey responses for 60 traditional FU patients (response rate 96.7%) were compared to 223 responses from the SSM programme (response rate 64%). SSMFU (%)Clinic FU (%)p-valueUnderstand surveillance protocol97.896.70.90Concerns addressed94.2100.00.50Contactable98.296.71.00Understanding signs of recurrence97.893.30.47Conclusions: Our results demonstrate the SSM programme is comparable to traditional FU with regards to patient education, addressing concerns, understanding the surveillance programme and how to make contact. Incidentally we found 66% (n= 40) of traditional FU patients would wait until their next appointment to raise concerns, supporting anecdotal experience of cases where diagnosis of recurrence was delayed. GP concerns of increased workload were unfounded with patients contacting the portal directly. Fifty required clinical review with one diagnosis of recurrence. Anecdotally fewer ultrasound requests alleviated the burden on radiology services.
Topic: Other
Introduction: An estimated 570 000 UK women live with and beyond the treatment of breast cancer, which is set to exceed 1.6 million by 2040. Current surveillance pathways will not meet the additional demand. The National Cancer Survivorship Initiative recommend supported self- management (SSM) systems to alleviate service pressures, reallocate resources efficiently and empower patients. We began a SSM surveillance programme via an online portal in November 2016. Our study aims to explore the patient perspective of our new service. MethodSurvey responses between two patient groups were compared, SSM patients and those with traditional annual clinic follow-up (FU). We used a Likert item and free text survey. Results: Survey responses for 60 traditional FU patients (response rate 96.7%) were compared to 223 responses from the SSM programme (response rate 64%). SSMFU (%)Clinic FU (%)p-valueUnderstand surveillance protocol97.896.70.90Concerns addressed94.2100.00.50Contactable98.296.71.00Understanding signs of recurrence97.893.30.47Conclusions: Our results demonstrate the SSM programme is comparable to traditional FU with regards to patient education, addressing concerns, understanding the surveillance programme and how to make contact. Incidentally we found 66% (n= 40) of traditional FU patients would wait until their next appointment to raise concerns, supporting anecdotal experience of cases where diagnosis of recurrence was delayed. GP concerns of increased workload were unfounded with patients contacting the portal directly. Fifty required clinical review with one diagnosis of recurrence. Anecdotally fewer ultrasound requests alleviated the burden on radiology services.
P133
Topic: Other
Introduction: An estimated 570 000 UK women live with and beyond the treatment of breast cancer, which is set to exceed 1.6 million by 2040. Current surveillance pathways will not meet the additional demand. The National Cancer Survivorship Initiative recommend supported self- management (SSM) systems to alleviate service pressures, reallocate resources efficiently and empower patients. We began a SSM surveillance programme via an online portal in November 2016. Our study aims to explore the patient perspective of our new service. MethodSurvey responses between two patient groups were compared, SSM patients and those with traditional annual clinic follow-up (FU). We used a Likert item and free text survey. Results: Survey responses for 60 traditional FU patients (response rate 96.7%) were compared to 223 responses from the SSM programme (response rate 64%). SSMFU (%)Clinic FU (%)p-valueUnderstand surveillance protocol97.896.70.90Concerns addressed94.2100.00.50Contactable98.296.71.00Understanding signs of recurrence97.893.30.47Conclusions: Our results demonstrate the SSM programme is comparable to traditional FU with regards to patient education, addressing concerns, understanding the surveillance programme and how to make contact. Incidentally we found 66% (n= 40) of traditional FU patients would wait until their next appointment to raise concerns, supporting anecdotal experience of cases where diagnosis of recurrence was delayed. GP concerns of increased workload were unfounded with patients contacting the portal directly. Fifty required clinical review with one diagnosis of recurrence. Anecdotally fewer ultrasound requests alleviated the burden on radiology services.
Topic: Other
Introduction: An estimated 570 000 UK women live with and beyond the treatment of breast cancer, which is set to exceed 1.6 million by 2040. Current surveillance pathways will not meet the additional demand. The National Cancer Survivorship Initiative recommend supported self- management (SSM) systems to alleviate service pressures, reallocate resources efficiently and empower patients. We began a SSM surveillance programme via an online portal in November 2016. Our study aims to explore the patient perspective of our new service. MethodSurvey responses between two patient groups were compared, SSM patients and those with traditional annual clinic follow-up (FU). We used a Likert item and free text survey. Results: Survey responses for 60 traditional FU patients (response rate 96.7%) were compared to 223 responses from the SSM programme (response rate 64%). SSMFU (%)Clinic FU (%)p-valueUnderstand surveillance protocol97.896.70.90Concerns addressed94.2100.00.50Contactable98.296.71.00Understanding signs of recurrence97.893.30.47Conclusions: Our results demonstrate the SSM programme is comparable to traditional FU with regards to patient education, addressing concerns, understanding the surveillance programme and how to make contact. Incidentally we found 66% (n= 40) of traditional FU patients would wait until their next appointment to raise concerns, supporting anecdotal experience of cases where diagnosis of recurrence was delayed. GP concerns of increased workload were unfounded with patients contacting the portal directly. Fifty required clinical review with one diagnosis of recurrence. Anecdotally fewer ultrasound requests alleviated the burden on radiology services.
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